Nephew Re-update - Marfan Syndrome

My sister-in-law called a little while ago. When I had called earlier to check on Jonathan, I had talked with his dad. I think Joy was still processing information. There is a strong possibility that my nephew has Marfan Syndrome. I have been doing some reading since she called. Tomorrow, they will be doing an echocardiogram and seeing how his heart is. Of course, I figure it will be next week before she gets the results back from that. Seems like doctors love to make you wait over the weekend.

At any rate, if any of my readers know anything personally about Marfan Syndrome, I would appreciate hearing from you. I have told Joy I would go with her to the doctor's office to help ask questions and to help her listen. 2 pairs of ears are always better than one in situations like this.

We are looking at the bright side currently. The fact that Jonathan became ill with another problem at the same time that all of this concern was going on about MRSA may have been meant to be. It gave the doctors a chance and extra motivation to examine Jonathan thoroughly and to recognize physical characteristics of Marfan. Knowledge is a great thing... it will enable us to take proper steps to help Jonathan.